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Re: what does the future hold

Hang in there! My daugher was also born with complex chd. Truncus, AVSD, dextrocardia, and hypoplastic left ventricle. Also pulmonary atrisia. She is now 4 1/2 years old. She had her surgeries at 2 weeks, 4 months and 2 years. We also had huge feeding problems. Your post brought back all the memories of NG tubes, tape on the face, bolus feeds, feeding pumps and continuous feeds. It's a lot to deal with but over time our daughter got better at eating and now she goes to preschool and loves tacos and pizza and eats fruits and vegetables. It's seems along way off from where you are now but hopefully it will get better over time. Your aren't alone. I would love to follow your son's story. Are you on carepages or caringbridge?

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Re: Re: what does the future hold - by Drea - Dec 8, 2006 10:15am
Re: Re: Re: what does the future hold - by Dana Lee - Dec 11, 2006 10:32pm
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