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what does the future hold

I have recently just had a baby boy who was diagnosed with
asd,vsd,coa,thlaa,dorv,single ventricle.
He had the norwood at 10 days old and is not 2 1/2 months old. can anyone give me any tips, andvice, anything on what to expect. I know no one with such severe heart problems-- let alone such a group defects that required such intense surgery. We are waiting for his cath to determine when he might get the glen. The issue that is really bothering him is he has severe reflux. Requires a NG tube and can only eat 15-30 per feed before he needs the rest to be NG'd any tips??? does any other child hav reflux???
andrea

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Re: what does the future hold - by Christina - Nov 19, 2006 1:34pm
Re: Re: what does the future hold - by andrea - Nov 20, 2006 7:54pm
Re: what does the future hold - by Lauri - Dec 8, 2006 12:25am
Re: Re: what does the future hold - by Drea - Dec 8, 2006 10:15am
Re: Re: Re: what does the future hold - by Dana Lee - Dec 11, 2006 10:32pm
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