Thank you for writing! I am in Kennewick, WA. I went to Children's in Seattle until I was 25. I was then sent to UW Medical Center to Dr. Karen Stout. How is your daughter doing?
Just FYI, I don't get a chance to check my email very often, so if you write and I don't respond right away, I probably just havent read it yet. :) I'm starting to get quite a few responses, so I'll try to check it more often. Keep in touch!
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Truly, you are an inspiration.
My daughter also has VSD, COA, but she has already had her mitral valve replaced.