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Glenn Help

Please, I need advise. Emily (9 months old with HLHS, AV canal defect & Co-Arctation- repaired) has just undergone the Glenn. She made it through the surgery on April 30th, 06 and is now struggling to tolerate her feeds (through a GTube) and is cranky! I know she is getting used to the blodd flow with the Glenn, but she isn't sleeping, she's feeling bad and throwing up her formula. She was a rate of 26 ml an hour continous feeds and now we can't get her over 2ml an hour, a mere spit to what she was taking. Add on that she slept 2 hours yesterday.. that's total! Are the headaches making her sick because they are that bad?? She's not crying tears but she won't settle down..I am at a loss right now on what to do. If anyone has any advise please let me know. Oh ya, Motrin seems to make it worse for some reason. Thanks! Angela

Please check out her care page at
her page is ewrather
I hope you can visit!

Re: Glenn Help - by Brandy - May 18, 2007 2:51am
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